Our patients benefit from a variety of medical and supportive services---All of our services are free. Whether it’s annual medical monitoring exams or treatment for a certified WTC-related condition, our specially trained staff is dedicated to offering the best possible care and ensuring our responders are treated with compassion and respect.
Our patients are eligible to participate in health monitoring exams once a year. Monitoring exams help track health changes, potentially detecting health issues early--when they are most treatable.
During a monitoring visit, the patients meet with a variety of clinical and clinical support staff, which include patient advocates, nurses, clinicians, social workers, and others. The staff completes a comprehensive battery of tests, inventories, and assessments, including periodic chest x-rays, laboratory tests, and diagnostic procedures, as necessary.
The information we gather during the monitoring exam is important for understanding the totality of health symptoms that are related to 9/11 exposure—both mental and physical outcomes.
With this valuable information, we have been able to better understand health trends in the 9/11 responder population and the synergistic quality of 9/11 illnesses and their impact on the well-being of our patients.
As a hub for patient care, we:
- Identify 9/11-related conditions
- Request certification so that conditions are covered by the WTC Health Program
- Provide the first level of care for certified conditions
- Refer complicated cases to specialists in our network
Our patients most commonly exhibit a combination of symptoms related to their 9/11 exposure that affect their breathing and digestive systems. If an injury was sustained at the WTC sites, it is common to have lingering musculoskeletal issues. Furthermore, the psychological trauma experienced by nearly all of our patients has left an indelible mark. Therefore, symptoms of post-traumatic stress disorder, depression, and anxiety persist and interact with other physical symptoms.
Many of the disease trajectories and treatment response patterns we see are atypical; thus, the medicine the LI-CCE practices is highly specialized, requiring a vibrant research program that drives innovative approaches to care. We continuously assess and modify our medical care model to treat the changing needs of our patients.
With a truly comprehensive approach, the LI-CCE integrates personalized preventive care, social work and psychiatry, and other specialties as part of our distinctive standard care paradigm.
Our provider network includes physicians affiliated with esteemed institutions, including Stony Brook Medicine, Winthrop University Hospital, Sloan-Kettering, and North Shore-Long Island Jewish.
It is essential to our mission that our patients have a seamless healthcare experience. In addition to the medical care we offer, we provide supportive services to help our patients understand and utilize their Program benefits. Unlike many other healthcare programs, ours often requires extensive documentation--navigating this can be confusing.
We have numerous resources to minimize this stress. Our nurses and social workers work individually with each patient to coordinate their care, offering additional support for our patients with cancer. We educate, counsel, and connect patients to outside resources (including public benefits like the Victim Compensation Fund and workers compensation) that can help them cope with the social and economic repercussions resulting from their 9/11-related injuries and illnesses.
Here are some areas where our care management staff can assist:
Cancer Care Coordination
Worker’s Compensation/Line of Duty Injury Paperwork
Victim’s Compensation Fund
Other Disability Paperwork
Dealing with long-term illness can be further complicated by smoking, poor eating habits, and lack of exercise. So naturally, our focus has turned to patient wellness and encouraging wellness behaviors.
We have developed innovative group therapy models to encourage wellness behavior in our patients. Through these groups, we monitored the effects of this modified health behavior on the 9/11 exposure-related conditions.
Our patients have enthusiastically participated and we plan to continue to offer more of these types of groups to all of our patients.
Please see our research section for more details.
Our Patient Advocates are fundamental to our patient outreach and education.
All of our patients are assigned to a specific advocate, whose role is to educate patients on the ins and outs of the WTC Health Program, keep them abreast of changes in the Zadroga Law and their benefits, and inform them about programs and activities offered at the Stony Brook WTC Wellness Program.
We have found that our patients benefit greatly from having a point person who they can call with questions, concerns, or updates. We think of our patient advocates as the patients’ ultimate resource.